5/18/2010

    Well today was a busy day, with a visit to John Hopkins. Mason has been having a problem with running fevers and vomiting. He has had lots of tests done, bloodwork, stool specimen, chest x-rays, cultures done on the med-port checking for infection in that, plus ultra sound of his abdomen and everything has come back fine until today. They finally found out that he has fluid in his right ear, so they are sending him to an ear, nose and throat specialist.

   Mason now weighs 20lbs. 6ounces and we are proud as peacocks of that accomplishment!

   More updates to come as I get them!

   Let me start off by introducing myself, I am Susan Wantz and I live in SC. I am Mason's grandmother. As Mason's needs consume Susan and Bill they have been unable to update as they would like, therefore they have asked me to do the updating for them. I am proud and honored to be asked to help in this way as they are a very special family.

   For the past several months Mason has been seen by John Hopkins Hospital in Baltimore Maryland. He is still on the organ transplant list in Pittsburg. John Hopkins has been trying to rehabilitate and maximize adaption of his small bowel until the organs become available.

Mason's fund-rasing dance is this Saturday!! Join us to raise money for Mason!  We've almost hit the $60,000 mark!  Help us hit it this Saturday!  Call Cindy with any quesitons. 

Sticktime

Classic Rock Band Benefit Dance

Saturday January 30th!!

9pm till 1am

Recently there has been lots of ongoing excitement, lots of changes and many firsts for Mason.

Mason has lots of fund raising events coming up in the next few weeks!  Come join us in our mission to raise money for Mason!  Events include a HUGE bakesale, A holiday Open House at the Manchester Fire Hall with lots of vendors, Longerberger Basket Bingo and a Sticktime concert! 

Check out the details under events and activities.

Mason was discharged from the hospital yesterday.  He ended up having 2 line cultures drawn from his central line to check for infection, both of which were negative!  YEAH!  His lymphocyte count came back a little high, so they are thinking that the vomiting was due to a virus. 

We are very happy to be home again.  It feels so good to sleep in our own beds and I know that Mason missed his as well.  I gave Mason a bath this morning and then we quickly found our old routine of cuddling and watching Sesame Street until Mason was ready for a nap.  Whoever said "there's no place like home" didn't know the half of it!!

Ok everyone, this is the latest.......

We have not yet received any results from Mason's line culture.  They are treating him with general antibiotics until we hear from the lab.  Luckily, they have not stopped his feeds this time; that usually makes for a very unhappy baby!  Mason only had one nap yesterday, and had been up since 1:00 in the afternoon.  Once again, Mason missed home and his own bed lastnight.  That seems to be an issue any time he is hospitalized.  The doctor had to give him Benadryl at 2 a.m because he just wouldn't sleep.  I did take him out into the hallway to walk around for a bit where he seemed much happier.  Unfortunately the battery on his I.V. pump was almost dead and needed to be plugged in, so again we were confined to our room.  Mason finally fell asleep around 3 a.m.

Mason will be admitted to University of MD Pediatric Floor this afternoon for a suspected line infection. He has been showing all of the same symptoms as last time with intermittent normal and low grade temps. Although the nurse came out last night and drew a line culture, Mason's team feels that he probably is brewing another infection and feels that it would be best to have him admitted to the hospital. I will update everyone when we can breathe.